Video: Canavan disease: Year of the Zebra - Video Explanation! | Osmosis | Osmosis
Video: Canavan disease: Year of the Zebra - Video Explanation! | Osmo…
Nov 8, 2024
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#canavandisease #everymomentmatters #genetherapy #raredisease | Gianpiero Lazzari
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5 months ago
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Juan and Natalia Lavato, from Argentina, had their world changed when their son, Ciro, was diagnosed with Canavan disease, a rare degenerative condition that damages nerve cells in the brain, affecting vision, speech and motor functions. After consulting ten specialists to confirm his diagnosis, they found what mattered most to them for Ciro - hope for Ciro’s future! Ciro was accepted into a groundbreaking gene therapy clinical trial at Dayton Children's Hospital. Led by Dr. Lober, pediatric neu
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Juan and Natalia Lavato, from Argentina, had their world change…
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FacebookDayton Children's Hospital
This is Alana, a 6.5 year old girl who lives with #Canavan disease — a rare genetic disorder that takes away her ability to control her body Alana cannot sit, walk or hold things on her own, and experiences severe muscle stiffness and joint tension. But she feels. She understands. She loves when her parents are close, when someone sings to her, holds her hands, or takes her for a walk. Yet every day, her family and specialists fight for one simple thing — for her body to stay without pain💔 Sess
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This is Alana, a 6.5 year old girl who lives with #Canavan disease — a r…
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