Home | Cystic Fibrosis Foundation
Sep 18, 2024 · 800-FIGHT-CF (800-344-4823) Cystic Fibrosis Foundation (national office) 4550 Montgomery Ave. Suite 1100 N Bethesda, MD 20814. More Ways to Get in Touch.
Intro to CF - Cystic Fibrosis Foundation
For help with Insurance, Financial, Legal, and Other Issues. Contact a dedicated CF Foundation Compass case manager: Call us at 844-COMPASS. (1-844-266-7277) Mon - Thu, 9 am - 7 pm ET Fri, 9 am - 5 pm ET. More Ways to Get Help. Cystic fibrosis is a genetic disorder that affects the lungs, pancreas, and other organs.
About Cystic Fibrosis
Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and adults living with cystic fibrosis in the United States (and an estimated 105,000 people have been diagnosed with CF across 94 countries), and CF can affect people of every racial and ethnic group.
Clinical Care Guidelines - Cystic Fibrosis Foundation
Nutrition in Children and Adults Clinical Care Guidelines. Nutritional support is a vital component of care for patients with cystic fibrosis. These recommendations cover caloric intake, dosing for pancreatic enzyme replacement therapy, and monitoring growth in childhood and weight status in patients of all ages.
About Us - Cystic Fibrosis Foundation
About Us. Mission We are in a relentless pursuit of a cure. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. Our Mission.
CF Diagnosis Clinical Care Guidelines - Cystic Fibrosis Foundation
Summary. The diagnosis of cystic fibrosis is based on clinical signs and symptoms consistent with the disease and objective evidence of cystic fibrosis transmembrane conductance regulator (CFTR) dysfunction. The Cystic Fibrosis Foundation assembled a group of 32 CF diagnosis experts from 10 countries to revise prior diagnostic criteria.
Get Help With CF Foundation Compass - Cystic Fibrosis Foundation
Get help by calling 844-COMPASS (1-844-266-7277) to speak with a dedicated case manager. You can also email us at [email protected] or submit an online service request. **NOTE: It may take 3-5 business days for your case manager to review your email or Compass Online Service Request form before contacting you.
CF Foundation Estimates Increase in CF Population
July 28, 2022 | 4 min read. Today, the CF Foundation announced that the population of people with cystic fibrosis has increased over the past decade, according to a new estimate. Close to 40,000 children and adults are living with cystic fibrosis in the United States and a total estimated 105,000 people have been diagnosed with CF across 94 ...
Infant Care Clinical Care Guidelines - Cystic Fibrosis Foundation
Infant Care Clinical Care Guidelines. These guidelines were developed by consensus based on expert opinion and a medical literature review to guide the monitoring and care of infants who have an abnormal cystic fibrosis newborn screening result, but do not meet the full criteria for a CF diagnosis. 15 min read.
Care Centers - Cystic Fibrosis Foundation
Teams of dedicated health care professionals in a nationwide network of more than 130 Cystic Fibrosis Foundation-accredited care centers partner with people with CF and their families to provide expert care and specialized disease management. 4 min read. Life with CF. Intro to CF. Managing CF. Research & Clinical Trials. CF Community. Get Involved.