I refused to let cystic fibrosis define my limits, using it instead as fuel to embrace life’s challenges and inspire others. Through endurance sports, public speaking, and coaching, I encourage people ...

I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to ...

When I fell into a health insurance nightmare after my lung transplant, my husband and I decided to move to his home country — England. Now, 10 years later, I feel like I float somewhere between the ...

Going to college comes with many changes, and for students with cystic fibrosis, there are additional unique challenges like managing medications and health concerns. While adapting to this transition ...

Parenting a child with cystic fibrosis is very new to me and my partner, Ryan. Our daughter, Audrina, is 6 months old and was diagnosed with CF shortly after birth. Audrina’s experience with CF has ...

I was born in 1983, beginning my lifelong journey with cystic fibrosis. My early days were fraught with challenges. I had a swollen abdomen at birth, struggled with failure to thrive, and suffered ...

The Rocky Mountain Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...

The Maryland Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.

Close to 40,000 people in the U.S. have cystic fibrosis, a rare genetic disease. The majority of people with CF are diagnosed by age 2 thanks to newborn screening tests. If you have CF or are ...

The Delaware Valley Chapter - Philadelphia Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many ...